​This policy explains how and why we collect your information, what we do with it, and how we keep it safe.

 

We also outline your rights to check what information we hold, ensure its accuracy, and request that we no longer contact you. By providing your personal information, you help us enhance your experience with TEF, ensuring that we keep you informed about our latest campaigns and achievements.

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When you subscribe to our newsletter on The Endometriosis Foundation (TEF) website, make a donation, respond to a survey, or fill out a form, you are providing us with your personal data - information that identifies you.

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How We Collect Information About You

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The Endometriosis Foundation collects information that you voluntarily provide on our website, in-person, or via email. We do not collect data from public sources or third parties. Your information is never sold, shared, or exchanged with other organisations.

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What Information We Collect

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If you make a donation, register to fundraise, sign up for an event, or subscribe to our newsletter, we typically collect:

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• Name

• Email address

• Postal address

• Telephone number

• Bank account, debit, or credit card details (for donations)

 

How We Use Your Information

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We use this information to:

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• Process donations, including Gift Aid where applicable.

• Provide updates on our work, events, and fundraising efforts.

• Support your fundraising activities for TEF.

• Improve our website and communication efforts.

• Notify you of any changes to our services.

 

We do not use your personal data for any purposes beyond communication and keeping you informed about TEF’s work.

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How You Can Cancel Your Consent

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If you wish to stop receiving communications from us or want us to delete your information, you can contact us at any time by emailing our team at hello@theendometriosisfoundation.org with ‘unsubscribe’ in the subject line. An opt-out option is also available on all our newsletters and marketing materials.

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How We Keep Your Information Safe

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We ensure your data is securely stored and protected according to industry best practices and legal requirements. Our website uses encrypted forms, and our network is safeguarded against unauthorised access. Only authorised TEF staff have access to your data.

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We do not share or disclose your information to other organisations. The only exceptions are when required by law, to protect the safety of individuals, or to comply with legal processes.

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Policy Updates

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We may update this policy periodically to reflect changes in our practices or legal obligations. We encourage you to review it regularly for any updates.

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For any questions regarding this Privacy Policy, please reach out to our team by emailing: hello@theendometriosisfoundation.org 

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